5:21 PM

Miraflex glasses review


Elora got her first pair of glasses, we knew right off that we wanted to get her Miraflex.  The majority of albinism kids we know wear them, kids and moms agree they rock! 
Elora wearing Baby Lux model

Cute factor
They come in lots of colors and styles to suit any style, moms know that letting kids have a say in their choices can help get them on board and you can rest assured that all of these are great choices.  They are also designed to fit a baby from newborn and up so you can find the right size for even the tiniest head.
Durable
They are constructed from one continuous piece of rubbery plastic. No hinges, no wires, no metal, they are twistable and pliable.  Elora has already face planted wearing them and they are no worse for wear.  Other parents mentioned they are also preferable for rough play that toddlers do because normal glasses that do break can also be a poking hazard to the child’s face.
They stay on
Elora’s beautiful moon shaped face’s highest point are her cheeks not her nose so typical glasses that rely on the nose and ears to support them do not work for her at all.  Her ears are also so floppy that typical glasses just fold them right over and they slip off.  Miraflex glasses are more like swimming goggles with an adjustable back strap to keep them secure on her head, the ears and nose play only a small supporting and positioning role but the main support comes from the rear band.
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Kids with albinism seem to have a huge spectrum of light sensitivity, but from what I can tell Elora seems to be more sensitive than most.  She is also only affected by natural light not indoor artificial light.  For these reasons we felt that transitions lenses would not be effective for her because they do not transition fast enough or dark enough and they have trouble differentiating from natural and artificial light.  We wanted something that was much more under our control.  Obviously we don’t want her taking her prescription glasses of for risk of loss or damage plus she needs them to see!  What I envisioned idealy were clip on sunglasses, but I could only find them in adult sizes and they are spring loaded these days and depend on the width.  I am still looking for the old school style that works on an actual clip and flip mechanism in a small enough size.  In the mean time I was inspired by sun glasses I found for my husband that are designed to slide over top of his prescription glasses.
He really likes these because they also provide side coverage.  They were just too big for baby, but any adults or older kids with albinism, check these out!  http://www.cocoonseyewear.com/
I took this idea and fitted my own device using Elora’s existing store bought sunglasses.  We are hard core sunglass collectors and we own about 15 pairs and styles.  Through some testing I found that sunglasses with a flat front worked best with our Miraflex style.  Just so happens that our heart shape glasses from Joe fresh were the best fit and at only $8 we stoked up on ever color!  I tried leaving the arms on the glasses and attaching them to the band and this may be a solution for your child but it was too weighty on Elora’s floppy ears. 
I removed the arms using a glasses screwdriver and threaded clear Goody brand hair elastics into the now empty screw hole and then created a linking chain of elastics to the opposite side. 
The little tab that used to hold the arms fits perfectly on top of the Miraflex glasses where the arm and frame meet and the elastic holds it in place. 
They are easy to use and Elora can take them on and off on her own, another goal we had. They stayed in place during a sledding outing and downhill tumble, so I am pretty impressed so far.

*Note: For any boy readers out there that may not be thrilled about heart shaped glasses I did find that aviator and Ray Band imitation style glasses were also good fit for the Miraflex, just avoid any thing that has a wraparound or curvature on the face.

3 comments:

Anonymous said...

my guys aren't effected too much by indoor light either, but we still found that having the glasses given a light tinting at the top of the glasses transitioning down to nothing at bottom makes them even more comfortable. We had this done on the glasses they wear all day at school. Transitions weren't going to work for them either. They definitely don't get dark enough for outside. We end up having them switch to outside sunglasses that have a good curve to help with light that comes in from the side. I liked the idea of polarized lenses to help cut the glare.... but they didn't like them indoors as they were too dark even with the lightest polarizing lens. It seems there are no "perfect" solutions for them. At least they are happy with their gradiated tint glasses and don't put up a fuss about wearing them!
-jennifer c

Anonymous said...

This is so helpful! I've been looking for a way to make our Miraflex frames into sunglasses and am very thankful to have found your post. Can you tell me where you found Joe Fresh kid's sunglasses? Thanks!

Sylvia Eng said...

Joe Fresh is a Canadian brand, maybe try Claire's I think they are in the US as well and I have had good luck there. Also you can order some online at this link: http://www.aliexpress.com/item/Free-Shipping-Infants-Kids-Plastic-Frame-Sunglasses-Baby-Girls-Bow-knot-Eyewear-Heart-Shade-Sun-Glasses/32264828818.html
http://www.aliexpress.com/item/Kids-Sunglasses-Heart-Design-Styling-Electroplating-Shining-Frame-With-UV400-Protection-Lenses/32264189452.html